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001-es BibID:	BIBFORM120487
035-os BibID:	(Scopus)85141989280 (WoS)000906297800001
Első szerző:	Ablonczy László
Cím:	Assessment of Quality of Life in Children With Pulmonary Hypertension Using Parent and Self-report Questionnaires / Laszlo Ablonczy, Zita Mayer, Orsolya Somoskövi, Andrea Berkes, Orsolya Csenteri, Eva Kis, György S. Reusz
Dátum:	2022
ISSN:	0041-1345
Megjegyzések:	Pulmonary arterial hypertension (PAH) is a progressive disease characterized by elevation of pulmonary vascular resistance and right ventricular failure. By using advanced therapies to reduce mortality, clinicians focus on improving functional status and quality of life (QOL). The aim of our study was to assess health-related QOL of pediatric patients with PAH. Parents of all children (aged 2-18 years) and patients aged 5-18 years with an appropriate level of intellectual development completed general and cardiac-specific validated surveys (Pediatric Quality of Life Inventory 4.0 and Pediatric Quality of Life Inventory 3.0, respectively). Demographic and clinical information was collected to grade disease severity. Twenty-five children were enrolled, yielding 25 parent reports and 15 patient self-reports. The PAH group had significantly lower scores than healthy children in all domains. Patients with World Health Organization Functional Class I had significantly higher parent proxy scores in School Functioning (P = .029) and in Heart Problems and Symptoms domain (P = .014) Patients with tricuspid annular plane systolic excursion below ?2 z score showed impairment in each parent proxy general domain and in the Cognitive Problems score of the Cardiac module (P = .006). In conclusion the QOL of patients with PAH was impaired in every domain compared with healthy children. Patients with reduced right ventricle systolic function showed significantly lower QOL in all core domains. These results point to the need for psychosocial rehabilitation in addition to somatic care to improve the QOL in this severely ill population.
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban folyóiratcikk Child Humans Hypertension, Pulmonary Proxy Quality of Life Self Report Surveys and Questionnaires
Megjelenés:	Transplantation Proceedings. - 54 : 9 (2022), p. 2598-2602. -
További szerzők:	Mayer Zita Somoskövi Orsolya Berkes Andrea (1973-) (csecsemő- és gyermekgyógyász) Csenteri Orsolya Karola (1987-) (népegészségügyi ellenőr, rehabilitációs szakember) Kis Éva Reusz György
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