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001-es BibID:	BIBFORM096516
Első szerző:	Riznik, Petra
Cím:	Management of coeliac disease patients after the confirmation of diagnosis in Central Europe / Riznik Petra, De Leo Luigina, Dolinsek Jasmina, Gyimesi Judit, Klemenak Martina, Koletzko Berthold, Koletzko Sibylle, Koltai Tunde, Korponay-Szabó Ilma Rita, Krencnik Tomaz, Milinovic Marina, Not Tarcisio, Palcevski Goran, Sblattero Daniele, Werkstetter Katharina Julia, Dolinsek Jernej
Dátum:	2022
ISSN:	0954-691X
Megjegyzések:	Background: Recently published paediatric guidelines for diagnosing coeliac disease do not include recommendations on the follow-up of coeliac disease patients. Goal: The aim of this study was to assess the management practices and experience of coeliac disease patients with their follow-up appointments in Central Europe. Study: Gastroenterologists and coeliac disease patients in five Central European countries were asked to complete the web-based questionnaire focusing on coeliac disease management practices. Results: Answers from 147 gastroenterologists and 2041 coeliac disease patients were available for the analysis. More than half of the gastroenterologists (58.5%) schedule the first follow-up visit within 3 months after the diagnosis. At follow-up, tissue transglutaminase antibodies are checked in almost all patients (95.9%). Approximately two-thirds (60.7%) of gastroenterologists refer all of their patients to the dietitian at diagnosis. Similarly, 42.8% of coeliac disease patients reported that they had not been appointed to a dietitian. Almost one-third of coeliac disease patients (30.8%) reported that they had no follow-up appointments with gastroenterologist at all. Conclusions: Follow-up of coeliac disease patients is suboptimal in Central Europe. Many patients are not followed regularly. A lot of patients are not referred to a dietitian. The recommendations on the optimal follow-up of coeliac disease patients are needed in order to improve patient care
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban folyóiratcikk coeliac disease adults children Central Europe management celiac disease
Megjelenés:	European Journal Of Gastroenterology & Hepatology. - 34 : 1 (2022), p. 27-32. -
További szerzők:	De Leo, Luigina Dolinsek, Jasmina Gyimesi Judit Klemenak, Martina Koletzko, Berthold Koletzko, Sibylle Koltai Tünde Korponay-Szabó Ilma (1959-) (gyermekgyógyász) Krencnik, Tomaz Milinovic, Marina Not, Tarcisio Palcevski, Goran Sblattero, Daniele Werkstetter, Katharina (gyermekgyógyász, gasztroenterológus) Dolinśek, Jernej
Pályázati támogatás:	Interreg Central Europe CE111 Egyéb EFOP-3.6.1-16-2016-00022 EFOP NKFI120392 NKFIH
Internet cím:	Szerző által megadott URL DOI Intézményi repozitóriumban (DEA) tárolt változat
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