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001-es BibID:	BIBFORM089541
Első szerző:	Garbóczy Szabolcs
Cím:	The use of the Hungarian Test Your Memory (TYM-HUN), MMSE, and ADAS-Cog tests for patients with mild cognitive impairment (MCI) in a Hungarian population : a cross-sectional study / Garbóczy Szabolcs, Magócs Éva, Szőllősi Gergő József, Harsányi Szilvia, Égerházi Anikó, Kolozsvári László Róbert
Dátum:	2020
ISSN:	1471-244X
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban folyóiratcikk
Megjelenés:	BMC Psychiatry. - 20 : 1 (2020), p. 571-577. -
További szerzők:	Magócs Éva Szőllősi Gergő József (1991-) (népegészségügyi ellenőr, népegészségügyi szakember) Kolozsváriné Harsányi Szilvia (1983-) (okleveles egészségpolitikai szakértő) Égerházi Anikó (1957-) (neurológus, pszichiáter, pszichoterapeuta) Kolozsvári László Róbert (1977-) (háziorvos)
Internet cím:	Szerző által megadott URL DOI Intézményi repozitóriumban (DEA) tárolt változat
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001-es BibID:	BIBFORM053098
Első szerző:	Puschner, Bernd
Cím:	Development and psychometric properties of a five-language multiperspective instrument to assess clinical decision making style in the treatment of people with severe mental illness (CDMS) / Bernd Puschner, Petra Neumann, Harriet Jordan, Mike Slade, Andrea Fiorillo, Domenico Giacco, Anikó Égerházi, Tibor Ivánka, Malene Krogsgaard Bording, Helle Østermark Sørensen, Arlette Bär, Wolfram Kawohl, Sabine Loos, the CEDAR study group
Dátum:	2013
ISSN:	1471-244X
Megjegyzések:	BACKGROUND:The aim of this study was to develop and evaluate psychometric properties of the Clinical Decision Making Style (CDMS) scale which measures general preferences for decision making as well as preferences regarding the provision of information to the patient from the perspectives of people with severe mental illness and staff.METHODS:A participatory approach was chosen for instrument development which followed 10 sequential steps proposed in a current guideline of good practice for the translation and cultural adaptation of measures. Following item analysis, reliability, validity, and long-term stability of the CDMS were examined using Spearman correlations in a sample of 588 people with severe mental illness and 213 mental health professionals in 6 European countries (Germany, UK, Italy, Denmark, Hungary, and Switzerland).RESULTS:In both patient and staff versions, the two CDMS subscales "Participation in Decision Making" and "Information" reliably measure distinct characteristics of decision making. Validity could be demonstrated to some extent, but needs further investigation.CONCLUSIONS:Together with two other five-language patient- and staff-rated measures developed in the CEDAR study (ISRCTN75841675) - "Clinical Decision Making in Routine Care" and "Clinical Decision Making Involvement and Satisfaction" - the CDMS allows empirical investigation of the complex relation between clinical decision making and outcome in the treatment of people with severe mental illness across Europe.
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban clinical decision making psycho etric properties several mental illness
Megjelenés:	BMC Psychiatry [electronic resource]. - 13 : 48 (2013), p. [1-10]. -
További szerzők:	Neumann, Petra Jordan, Harriet Slade, Mike Fiorillo, Andrea Giacco, Domenico Égerházi Anikó (1957-) (neurológus, pszichiáter, pszichoterapeuta) Ivánka Tibor Bording, Malene Krogsgaard Sørensen, Helle Østermark Bär, Arlette Kawohl, Wolfram Loos, Sabine CEDAR study group
Internet cím:	DOI Intézményi repozitóriumban (DEA) tárolt változat
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001-es BibID:	BIBFORM018220
Első szerző:	Puschner, Bernd
Cím:	Clinical Decision Making and Outcome in Routine Care for People with Severe Mental Illness (CEDAR) : study protocol / Puschner Bernd, Steffen Sabine, Slade Mike, Kaliniecka Helena, Maj Mario, Fiorillo Andrea, Munk-Jorgensen Povl, Larsen Jens, Égerházi Anikó, Nemes Zoltan, Rössler Wulf, Kawohl Wolfram, Becker Thomas
Dátum:	2010
ISSN:	1471-244X
Megjegyzések:	A considerable amount of research has been conducted on clinical decision making (CDM) in short-term physical conditions. However, there is a lack of knowledge on CDM and its outcome in long-term illnesses, especially in care for people with severe mental illness. Methods/Design The study entitled "Clinical decision making and outcome in routine care for people with severe mental illness" (CEDAR) is carried out in six European countries (Denmark, Germany, Hungary, Italy, Switzerland and UK). First, CEDAR establishes a methodology to assess CDM in people with severe mental illness. Specific instruments are developed (and psychometric properties established) to measure CDM style, key elements of CDM in routine care, as well as CDM involvement and satisfaction from patient and therapist perspectives. Second, these instruments are being put to use in a multi-national prospective observational study (bimonthly assessments during a one-year observation period; N = 560). This study investigates the immediate, short- and long-term effect of CDM on crucial dimensions of clinical outcome (symptom level, quality of life, needs) by taking into account significant variables moderating the relationship between CDM and outcome. Discussion The results of this study will make possible to delineate quality indicators of CDM, as well as to specify prime areas for further improvement. Ingredients of best practice in CDM in the routine care for people with severe mental illness will be extracted and recommendations formulated. With its explicit focus on the patient role in CDM, CEDAR will also contribute to strengthening the service user perspective. This project will substantially add to improving the practice of CDM in mental health care across Europe.
Tárgyszavak:	Orvostudományok Elméleti orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
Megjelenés:	BMC Psychiatry [electronic resource]. - 10 : 1 (2010), p. 90. -
További szerzők:	Steffen, Sabine Slade, Mike Kaliniecka, Helena Maj, Mario Fiorillo, Andrea Munk-Jørgensen, Povl Larsen, Jens Égerházi Anikó (1957-) (neurológus, pszichiáter, pszichoterapeuta) Nemes Zoltán (1969-) (molekuláris biológus, pszichiáter) Rössler, Wulf Kawohl, Wolfram Becker, Thomas
Pályázati támogatás:	HEALTH-2007-3.1-4/CEDAR/223290 FP7
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001-es BibID:	BIBFORM109814
035-os BibID:	(cikkazonosító)193 (scopus)85150952445 (wos)000959451600002
Első szerző:	Uhlenbusch, Natalie
Cím:	Improving quality of life in patients with rare autoimmune liver diseases by structured peer-delivered support (Q.RARE.LI) : study protocol for a transnational effectiveness-implementation hybrid trial / Natalie Uhlenbusch, Arpinder Bal, Boglárka Balogh, Annika Braun, Anja Geerts, Gideon Hirschfield, Maciej K. Janik, Ansgar W. Lohse, Piotr Milkiewicz, Mária Papp, Carine Poppe, Christoph Schramm, Löwe Bernd
Dátum:	2023
ISSN:	1471-244X
Megjegyzések:	Aims: Psychosocial support is a crucial component of adequate rare disease care, but to date psychosocial support needs of this patient population are insufficiently met. We strive to evaluate the effectiveness of a peer-delivered psychosocial support intervention in patients with rare autoimmune liver diseases in five countries and prepare its implementation. Methods: The psychosocial support program combines structured, manual-based self-help and peer-support. Participant complete a self-help book from home over the course of six weeks, which is based on Acceptance and Commitment Therapy. In addition, they receive weekly telephone-based support sessions with a trained and supervised peer-counsellor. In a first efficacy trial (Depping et al., 2021, JAMA Psychiatry), the program led to improved quality of life, disease acceptance, self-management abilities, social support and reduced helplessness. Within Q.RARE.LI, we will conduct an effectiveness-implementation hybrid trial. To assess effectiveness, we will include N=240 patients with rare autoimmune liver diseases into a two-armed RCT, comparing the support program in addition to care-as-usual (CAU) with CAU alone. Our primary effectiveness outcome is mental health-related quality of life. To assess implementability, we will conduct a mixed-methods process evaluation, examining perceived acceptability and feasibility of the program and explore its implementability with patients, peer-counselors, and healthcare providers. Based on these results, we will derive country-specific implementation strategies. Discussion: The trans-diagnostic and location-independent program has the potential to address the unmet psychosocial support needs of patients with rare diseases. By preparing the implementation in five countries, we hope to improve comprehensive healthcare for an often neglected group.
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban folyóiratcikk
Megjelenés:	BMC Psychiatry. - 23 : 1 (2023), p. 1-11. -
További szerzők:	Bal, Arpinder Balogh Boglárka (1993-) (belgyógyász) Braun, Annika Geerts, Anja Hirschfield, Gideon M. Janik, Maciej K. Lohse, Ansgar W. Milkiewicz, Piotr Papp Mária (1975-) (belgyógyász, gasztroenterológus) Poppe, Carine Schramm, Christoph Bernd, Löwe
Internet cím:	Intézményi repozitóriumban (DEA) tárolt változat DOI
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