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001-es BibID:BIBFORM047540
035-os BibID:PMID:22931220
Első szerző:Beaufort, Carine de
Cím:Harmonize care to optimize outcome in children and adolescents with diabetes mellitus : treatment recommendations in Europe / Carine de Beaufort, Andreani Vazeou, Zdenek Sumnik, Ondrej Cinek, Ragnar Hanas, Thomas Danne, Bärbel Aschemeier, Gun Forsander, SWEET Group
Dátum:2012
ISSN:1399-543X
Megjegyzések:Identify and evaluate current treatment recommendations in Europe for the care of children with diabetes in view of the European Union (EU) recommendations for Reference Centers. METHODS: A questionnaire was sent in 2008 to representatives of all EU countries and Norway, all known to be actively involved in pediatric diabetes care. Participants were asked whether specific guidelines were recommended and applied in their countries; when possible, they were invited to forward their national guidelines. As a second step, we evaluated the guideline mostly used in relationship to the recommendations of the EU. RESULTS: Information was obtained from all EU countries (including Scotland and Norway). National guidelines, as available, were forwarded for review. A 15/29 reported to use the International Society for Pediatric and Adolescent Diabetes (ISPAD) Clinical Practice Consensus Guidelines (CPCG), whereas 10 reported using national guidelines. These national guidelines were partly based on and/or compatible with ISPAD guidelines, but in most cases were far less detailed. The size and presentation differed (web based, booklet, page or chapter in adult guidelines). In four countries, no specific guidelines were used. As ISPAD CPCG were used most frequently, its content was evaluated within the EU Centres of Reference recommendations and minor changes were made in agreement with the ISPAD editor. DISCUSSION: Differences between guidelines may influence surveillance and quality of care in pediatric diabetes within Europe. Although a majority of countries is using or at least mentioning the ISPAD CPCG, their implementation as EU standard needs further endorsement. As language difficulties may hamper its implementation on a wider scale, further translation of the ISPAD guidelines should be endorsed to render it accessible to all healthcare professionals. With respect to the content, some changes were then made in agreement with the editors, adjusting them to the European context. For European Reference Centers, some further guidance on research may be included. Once implemented on an EU wide level, benchmarking of carefully defined robust quality of care and quality of life indicators will allow us to improve these guidelines on a regular basis ensuring an evidence-based care for all children with diabetes.
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
Megjelenés:Pediatric Diabetes. - 13 : Suppl. 16 (2012), p. 15-19. -
További szerzők:Vazeou, Andreani Šumník, Zdeněk Cinek, Ondrej Hanas, Ragnar Danne, Thomas Aschemeier, Bärbel Forsander, Gun Rurik Imre (1953-) (háziorvos, foglalkozás-egészségügyi szakorvos, urológus) SWEET Group
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2.

001-es BibID:BIBFORM037882
Első szerző:Cinek, Ondrej
Cím:Heterogeneity in the systems of pediatric diabetes care across the European Union / Ondrej Cinek, Zdeněk Šumník, Carine de Beaufort, Imre Rurik, Andriani Vazeou, László Madácsy, Natalie L. Papo, Thomas Danne, the SWEET Group
Dátum:2012
ISSN:1399-543X
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
delivery of health care - reimbursement - QC
Megjelenés:Pediatric Diabetes. - 13 : Suppl. 16 (2012), p. 5-14. -
További szerzők:Šumník, Zdeněk Beaufort, Carine de Vazeou, Andreani Madácsy László (Szeged) Papo, Natalie L. Danne, Thomas Rurik Imre (1953-) (háziorvos, foglalkozás-egészségügyi szakorvos, urológus) SWEET Group
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Intézményi repozitóriumban (DEA) tárolt változat
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3.

001-es BibID:BIBFORM050882
Első szerző:Danne, Thomas
Cím:SWEET - where are we heading with international type 1 diabetes registries? / Thomas Danne, Bärbel Aschemeier, Riccardo Perfetti, SWEET group
Dátum:2012
ISSN:1399-543X
Tárgyszavak:Orvostudományok Egészségtudományok idegen nyelvű folyóiratközlemény külföldi lapban
type 1 diabetes
SWEET
diabetes therapy
Megjelenés:Pediatric Diabetes. - 13 : Suppl. 16 (2012), p. 1-4. -
További szerzők:Aschemeier, Bärbel Perfetti, Riccardo Rurik Imre (1953-) (háziorvos, foglalkozás-egészségügyi szakorvos, urológus) SWEET Group
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4.

001-es BibID:BIBFORM037884
Első szerző:Danne, Thomas
Cím:Criteria for Centers of Reference for pediatric diabetes - a European perspective / Thomas Danne, Sylvia Lion, Lazlo Madaczy, Henk Veeze, Fillipe Raposo, Imre Rurik, Bärbel Aschemeier, Olga Kordonouri, the SWEET group
Dátum:2012
ISSN:1399-543X
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
electronic health record
HbA1c
quality control
reference centers
külföldön készült közlemény
Megjelenés:Pediatric Diabetes. - 13 : Suppl. 16 (2012), p. 62-75. -
További szerzők:Lion, Sylvia Madácsy László (Szeged) Veeze, Henk Raposo, Fillipe Rurik Imre (1953-) (háziorvos, foglalkozás-egészségügyi szakorvos, urológus) Aschemeier, Bärbel Kordonouri, Olga SWEET Group
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Intézményi repozitóriumban (DEA) tárolt változat
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5.

001-es BibID:BIBFORM047537
035-os BibID:PMID:22931223
Első szerző:Forsander, Gun
Cím:Technical solution for data collection, data safety and data privacy legislation : experiences from the SWEET study / Gun Forsander, Martin Pellinat, Michael Volk, Markus Muller, Leonardo Pinelli, Agnes Magnen, Thomas Danne, Bärbel Aschemeier, Carine de Beaufort, SWEET Group
Dátum:2012
ISSN:1399-543X
Megjegyzések:One of the most important tasks of the SWEET study is benchmarking the data collected. Information on the occurrence of the disease of diabetes, the treatment, and their outcomes in children from the different member states of European Union (EU) is crucial. How the collection of data is realized is essential, concerning both the technical issues and the results. The creation of SWEET Centers of Reference (CoR), all over Europe will be facilitated by the access to safe data collection, where legal aspects and privacy are ascertained. OBJECTIVE: To describe the rationale for- and the technical procedure in the data collection implementation, in the SWEET study. SUBJECTS: Selected data on all patients treated at SWEET CoR are collected. METHODS: The SWEET project data collection and management system, consists of modular components for data collection, online data interchange, and a database for statistical analysis. CONCLUSION: The SWEET study and the organization of CoR aims for the goal of offering an updated, secure, and continuous evaluation of diabetes treatment regimens for all children with diabetes in Europe. To support this goal, an appropriate and secure data management system as described in this paper has been created.
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
Megjelenés:Pediatric Diabetes. - 13 : Suppl. 16 (2012), p. 39-48. -
További szerzők:Pellinat, Martin Volk, Michael Muller, Markus Pinelli, Leonardo Magnen, Agnes Danne, Thomas Aschemeier, Bärbel Beaufort, Carine de Rurik Imre (1953-) (háziorvos, foglalkozás-egészségügyi szakorvos, urológus) SWEET Group
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Intézményi repozitóriumban (DEA) tárolt változat
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6.

001-es BibID:BIBFORM047536
035-os BibID:PMID:22931224
Első szerző:Lange, Karin
Cím:A pediatric diabetes toolbox for creating centres of reference / Karin Lange, Susan Klotmann, Heike Saßmann, Bärbel Aschemeier, Eva Wintergerst, Peter Gerhardsson, Olga Kordonouri, Agnieszka Szypowska, Thomas Danne, SWEET Group
Dátum:2012
Megjegyzések:ISPAD guidelines recommend age appropriate diabetes education concepts for young patients and their families as well as tools for nutritional management, psychosocial assessment, and psychological advice but their implementation in Europe is presently unknown. METHODS: On the basis of a structured survey among the European SWEET members information on established tools and programs in national languages were analyzed using an extensive literature and desk search. These were differentiated according to five age-groups and five target groups (young people with diabetes, parents, and other close relations, carers in school and nursery, and healthcare professionals). RESULTS: Responses and original tools were received from 11 SWEET countries reflecting the European status in 2011. More or less structured information for parents, close relations, and carers in school or nursery are available in all 11 participating countries. However, only two countries followed the recommendations of having published a structured, curriculum lead, and evaluated program for different age-groups and carers. One of these was evaluated nationwide and funded by the respective National Health Care System after accreditation. In addition a huge variety of creative tools, e.g., booklets, leaflets, games, videos, and material for educating children of different age-groups and their parents are available - but most of them are not linked to a structured education program. CONCLUSIONS: Harmonizing and integrating these materials into quality assured structured holistic national education programs will be an important future task for the ongoing SWEET project. A comprehensive European diabetes educational toolbox is aimed to be published and continuously updated on the SWEET website.
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
Megjelenés:Pediatric Diabetes. - 13 : 16 Suppl. (2012), p. 49-61. -
További szerzők:Klotmann, Susan Saßmann, Heike Aschemeier, Bärbel Wintergerst, Eva Gerhardsson, Peter Kordonouri, Olga Szypowska, Agnieszka Danne, Thomas Rurik Imre (1953-) (háziorvos, foglalkozás-egészségügyi szakorvos, urológus) SWEET Group
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Intézményi repozitóriumban (DEA) tárolt változat
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7.

001-es BibID:BIBFORM047538
035-os BibID:PMID:22931221
Első szerző:Martin, Delphine
Cím:Recommendations for age-appropriate education of children and adolescents with diabetes and their parents in the European Union / Delphine Martin, Karin Lange, Alexandra Sima, Dagmar Kownatka, Søren Skovlund, Thomas Danne, Jean-Jacques Robert, SWEET Group
Dátum:2012
ISSN:1399-543X
Megjegyzések:Education is the keystone of diabetes care, and structured self-management education is the key to a successful outcome. Existing guidelines provide comprehensive guidance on the various aspects of education and offer general and organizational principles of education, detailed curricula at different ages and stages of diabetes, and recommendations on models, methods, and tools to attain educative objectives. The International Society for Pediatric and Adolescent Diabetes guidelines give the most elaborate and detailed descriptions and recommendations on the practice of education, which other national guidelines address on specific aspects of education and care. The aim of the work package on education developed by Better Control in Paediatric and Adolescent Diabetes in the European Union: Working to Create Centers of Reference (SWEET) project was not to generate new guidelines but to evaluate how the existing guidelines were implemented in some pediatric diabetes reference centers. The SWEET members have completed a questionnaire that elaborates on the many aspects of delivery of education. This survey highlights a profound diversity of practices across centers in Europe, in terms of organization as well as the practices and the content of initial and continuing education. A toolbox is being developed within SWEET to facilitate exchanges on all aspects of education and to establish a process of validation of materials, tools, written structured age-adjusted programs, and evaluation procedures for the education of children and adolescents with diabetes.
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
Megjelenés:Pediatric Diabetes. - 13 : Suppl. 16 (2012), p. 20-28. -
További szerzők:Lange, Karin Sima, Alexandra Kownatka, Dagmar Skovlund, Søren Eik Danne, Thomas Robert, Jean-Jacques Rurik Imre (1953-) (háziorvos, foglalkozás-egészségügyi szakorvos, urológus) SWEET Group
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Intézményi repozitóriumban (DEA) tárolt változat
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