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001-es BibID:BIBFORM047537
035-os BibID:PMID:22931223
Első szerző:Forsander, Gun
Cím:Technical solution for data collection, data safety and data privacy legislation : experiences from the SWEET study / Gun Forsander, Martin Pellinat, Michael Volk, Markus Muller, Leonardo Pinelli, Agnes Magnen, Thomas Danne, Bärbel Aschemeier, Carine de Beaufort, SWEET Group
Dátum:2012
ISSN:1399-543X
Megjegyzések:One of the most important tasks of the SWEET study is benchmarking the data collected. Information on the occurrence of the disease of diabetes, the treatment, and their outcomes in children from the different member states of European Union (EU) is crucial. How the collection of data is realized is essential, concerning both the technical issues and the results. The creation of SWEET Centers of Reference (CoR), all over Europe will be facilitated by the access to safe data collection, where legal aspects and privacy are ascertained. OBJECTIVE: To describe the rationale for- and the technical procedure in the data collection implementation, in the SWEET study. SUBJECTS: Selected data on all patients treated at SWEET CoR are collected. METHODS: The SWEET project data collection and management system, consists of modular components for data collection, online data interchange, and a database for statistical analysis. CONCLUSION: The SWEET study and the organization of CoR aims for the goal of offering an updated, secure, and continuous evaluation of diabetes treatment regimens for all children with diabetes in Europe. To support this goal, an appropriate and secure data management system as described in this paper has been created.
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
Megjelenés:Pediatric Diabetes. - 13 : Suppl. 16 (2012), p. 39-48. -
További szerzők:Pellinat, Martin Volk, Michael Muller, Markus Pinelli, Leonardo Magnen, Agnes Danne, Thomas Aschemeier, Bärbel Beaufort, Carine de Rurik Imre (1953-) (háziorvos, foglalkozás-egészségügyi szakorvos, urológus) SWEET Group
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