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001-es BibID:BIBFORM097032
035-os BibID:(cikkazonosító)744516
Első szerző:Carinci, Fabrizio
Cím:Making Use of Comparable Health Data to Improve Quality of Care and Outcomes in Diabetes : the EUBIROD Review of Diabetes Registries and Data Sources in Europe / Fabrizio Carinci, Iztok Stotl, Scott G. Cunningham, Tamara Poljicanin, Ivan Pristas, Vivie Traynor, George Olympios, Vasos Scoutellas, Joseph Azzopardi, Kris Doggen, János Sándor, Róza Ádány, Karianne F. Lvaas, Przemka Jarosz-Chobot, Joanna Polanska, Simion Pruna, Simon de Lusignan, Marcello Monesi, Paolo Di Bartolo, Christa Scheidt-Nave, Christin Heidemann, Inbar Zucker, Anita Maurina, Jana Lepiksone, Peter Rossing, Martti Arffman, Ilmo Keskimäki, Soffia Gudbjornsdottir, Concetta Tania Di Iorio, Elisabeth Dupont, Stella de Sabata, Niek Klazinga, Massimo Massi Benedetti
Dátum:2021
Megjegyzések:Background: Registries and data sources contain information that can be used on an ongoing basis to improve quality of care and outcomes of people with diabetes. As a specific task of the EU Bridge Health project, we carried out a survey of diabetes-related data sources in Europe. Objectives: We aimed to report on the organization of different sources of diabetes information, including their governance, information infrastructure and dissemination strategies for quality control, service planning, public health, policy and research. Methods: Survey using a structured questionnaire to collect targeted data from a network of collaborating institutions managing registries and data sources in 17 countries in the year 2017. Results: The 18 data sources participating in the study were most frequently academic centres (44.4%), national (72.2%), targeting all types of diabetes (61.1%) covering no more than 10% of the target population (44.4%). Although population-based in over a quarter of cases (27.8%), sources relied predominantly on provider-based datasets (38.5%), fewer using administrative data (16.6%). Data collection was continuous in the majority of cases (61.1%), but 50% could not perform data linkage. Public reports were more frequent (72.2%) as well as quality reports (77.8%), but one third did not provide feedback to policy and only half published ten or more peer reviewed papers during the last 5 years. Conclusions: The heterogeneous implementation of diabetes registries and data sources hampers the comparability of quality and outcomes across Europe. Best practices exist but need to be shared more effectively to accelerate progress and deliver equitable results for people with diabetes.
Tárgyszavak:Orvostudományok Egészségtudományok idegen nyelvű folyóiratközlemény külföldi lapban
folyóiratcikk
diabetes
diabetes registries
quality of care
performance indicators
risk adjustment
health information
Megjelenés:Frontiers in Clinical Diabetes and Healthcare. - 2 (2021), p. 1-14. -
További szerzők:Stotl, Iztok Cunningham, Scott G. Poljicanin, Tamara Pristas, Ivan Traynor, Vivie Olympios, George Scoutellas, Vasos Azzopardi, Joseph Doggen, Kris Sándor János (1966-) (orvos-epidemiológus) Ádány Róza (1952-) (megelőző orvostan és népegészségtan szakorvos) Lvaas, Karianne F. Jarosz-Chobot, Przemyslawa Polanska, Joanna Pruna, Simion de Lusignan, Simon Monesi, Marcello Di Bartolo, Paolo Scheidt-Nave, Christa Heidemann, Christin Zucker, Inbar Maurina, Anita Lepiksone, Jana Rossing, Peter Arffman, Martti Keskimäki, Ilmo Gudbjornsdottir, Soffia Di Iorio, Concetta Tania Dupont, Elisabeth de Sabata, Stella Klazinga, Niek Benedetti, Massimo Massi
Pályázati támogatás:DG-SANCO in the EU project Bridge Health (GA 664691)
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