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001-es BibID:	BIBFORM089545
035-os BibID:	(WOS)000600601200003 (Scopus)85097310520
Első szerző:	Burmester, Gerd R.
Cím:	Evolving the comprehensive management of rheumatoid arthritis : identification of unmet needs and development of practical and educational tools / G. R. Burmester, J. M. Álvaro-Gracia, N. Betteridge, J. Calvo Alén, B. Combe, P. Durez, B. Fautrel, R. J. O. Ferreira, C. Gabay, A. Iagnocco, C. Montecucco, M. štergaard, S. Ramiro, A. Rubbert-Roth, T. Stamm, Z. Szekanecz, P. C. Taylor, M. van de Laar
Dátum:	2020
ISSN:	0392-856X
Megjegyzések:	Objectives: Despite availability of efficacious treatments, unmet needs still exist, preventing optimal and comprehensive management of rheumatoid arthritis (RA). Evolving the management of RA (eRA) is a European-wide educational initiative aiming to support improved patient care through practical and educational tools addressing specific unmet needs. Methods: A multidisciplinary Steering Committee (17 members, 12 countries) identified unmet needs within the management of RA and prioritised those with the greatest impact on patient outcomes. Practical educational tools addressing priority needs were then developed for dissemination and implementation by the rheumatology community across Europe. Results: Five areas of priority need were identified: increasing early recognition of RA and treatment initiation; treating RA to target; optimal, holistic approach to selection of treatment strategy, including shared decision-making; improving identification and management of comorbidities; and non-pharmacological patient management. A suite of 14 eRA tools included educational slides, best-practice guidance, self?assessment questionnaires, clinical checklists, a multidisciplinary team training exercise, an interactive patient infographic, and case scenarios. By April 2020, rheumatology professionals in 17 countries had been actively engaged in the eRA programme; in 11 countries, eRA tools were selected by national leaders in rheumatology and translated for local dissemination. A web platform, with country-specific pages, was developed to support access to the translated tools (https://www.evolvingthemanagementofra.com/). Conclusions: The eRA programme supports comprehensive management of RA across Europe through development and dissemination of practical educational tools. The eRA tools address priority needs and are available free of charge to the rheumatology community.
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban folyóiratcikk Rheumatoid arthritis medical education delivery of health care rheumatology patient care team
Megjelenés:	Clinical And Experimental Rheumatology. - 38 (2020), p. 1056-1067. -
További szerzők:	Álvaro-Gracia, Jose María Betteridge, Neil Calvo Alén, Jaime Combe, Bernard Durez, Patrick Fautrel, Bruno Ferreira, Ricardo J. O. Gabay, Cem Iagnocco, Annamaria Montecucco, Carlo Maurizio štergaard, Mikkel Ramiro, Sofia Rubbert-Roth, Andrea Stamm, Tanja A. Szekanecz Zoltán (1964-) (reumatológus, belgyógyász, immunológus) Taylor, Peter C. van de Laar, Mart
Internet cím:	Intézményi repozitóriumban (DEA) tárolt változat
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001-es BibID:	BIBFORM075623
035-os BibID:	(cikkazonosító)e000780 (WoS)000455537200030 (Scopus)85058345877
Első szerző:	Dejaco, Christian
Cím:	EULAR 'points to consider' for the conduction of workforce requirement studies in rheumatology / Christian Dejaco, Polina Putrik, Julia Unger, Daniel Aletaha, Gerolamo Bianchi, Johannes W. Bijlsma, Annelies Boonen, Nada Cikes, Axel Finck, Laure Gossec, Tore K. Kvien, Joao Madruga Dias, Eric L. Matteson, Francisca Sivera, Tanja A. Stamm, Zoltan Szekanecz, Dieter Wiek, Angela Zink, Sofia Ramiro, Frank Buttgereit
Dátum:	2018
ISSN:	2056-5933
Megjegyzések:	Objective: Current methods used for forecasting workforce requirements in rheumatology are disparate, as are the parameters incorporated into workforce projection studies. The objective of these European League Against Rheumatism (EULAR points to consider (PTC) is to guide future workforce studies in adult rheumatology in order to produce valid and reliable manpower estimates. Methods: The EULAR Standardised Operating Procedures were followed. A multidisciplinary task force with experts including patients with rheumatic diseases from 11 EULAR countries and the USA was assembled. A systematic literature review (SLR) was conducted to retrieve workforce models in rheumatology and other medical fields. PTC were based on expert opinion informed by the SLR, followed by group discussions with consensus obtained through informal voting. The level of agreement with the PTC was voted anonymously. Results: A total of 10 PTC were formulated. The task force recommends models integrating supply (=workforce available in rheumatology), demand (=health services requested by the population) and need (=health services that are considered appropriate to serve the population). In general, projections of workforce requirements should consider all factors relevant for current and future workload in rheumatology inside and outside of direct patient care. Forecasts of workforce supply should consider demography and attrition of rheumatologists, as well as the effects of new developments in healthcare. Predictions of future need/demand should take demographic, sociocultural and epidemiological development of the population into account. Conclusion: These EULAR-endorsed PTC will provide guidance on the methodology and the parameters to be applied in future national and international workforce requirement studies in rheumatology.
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban folyóiratcikk
Megjelenés:	RMD Open. - 4 : 2 (2018), p. 1-8. -
További szerzők:	Putrik, Polina Unger, Julia Aletaha, Daniel Bianchi, Gerolamo Bijlsma, Johannes W. Boonen, Annelies Cikes, Nada Finck, Axel Gossec, Laure Kvien, Tore K. Dias, João Madruga Matteson, Eric L. Sivera, Francisca Stamm, Tanja A. Szekanecz Zoltán (1964-) (reumatológus, belgyógyász, immunológus) Wiek, Dieter Zink, Angela Ramiro, Sofia Buttgereit, Frank
Internet cím:	DOI Intézményi repozitóriumban (DEA) tárolt változat
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001-es BibID:	BIBFORM081587
Első szerző:	Najm, Aurélie
Cím:	EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases / Aurélie Najm, Elena Nikiphorou, Marie Kostine, Christophe Richez, John D. Pauling, Axel Finckh, Valentin Ritschl, Yeliz Prior, Petra Balázová, Simon Stones, Zoltan Szekanecz, Annamaria Iagnocco, Sofia Ramiro, Francisca Sivera, Maxime Dougados, Loreto Carmona, Gerd Burmester, Dieter Wiek, Laure Gossec, Francis Berenbaum
Dátum:	2019
Megjegyzések:	Background Mobile health applications (apps) are available to enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health. However, guidance on the development and evaluation of such apps is lacking. Objectives The objective of this EULAR task force was to establish points to consider (PtC) for the development, evaluation and implementation of apps for self-management of RMDs. Methods A systematic literature review of app content and development strategies was conducted, followed by patient focus group and an online survey. Based on this information and along with task force expert opinion, PtC were formulated in a face-to-face meeting by a multidisciplinary task force panel of experts, including two patient research partners. The level of agreement among the panel in regard to each PtC was established by anonymous online voting. Results Three overarching principles and 10 PtC were formulated. Three PtC are related to patient safety, considered as a critical issue by the panel. Three are related to relevance of the content and functionalities. The requirement for transparency around app development and funding sources, along with involvement of relevant health professionals, were also raised. Ease of app access across ages and abilities was highlighted, in addition to considering the cost benefit of apps from the outset. The level of agreement was from 8.8 to 9.9 out of 10. Conclusion These EULAR PtC provide guidance on important aspects that should be considered for the development, evaluation and implementation of existing and new apps.
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban folyóiratcikk
Megjelenés:	Rheumatic and Musculoskeletal Diseases. - 5 (2019), p. 1-7. -
További szerzők:	Nikiphorou, Elena (reumatológus) Kostine, Marie Richez, Christophe Pauling, John D. Finckh, Axel Ritschl, Valentin Prior, Yeliz Balázová, Petra Stones, Simon Szekanecz Zoltán (1964-) (reumatológus, belgyógyász, immunológus) Iagnocco, Annamaria Ramiro, Sofia Sivera, Francisca Dougados, Maxime Carmona, Loreto Burmester, Gerd R. Wiek, Dieter Gossec, Laure Berenbaum, Francis
Internet cím:	DOI Intézményi repozitóriumban (DEA) tárolt változat
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001-es BibID:	BIBFORM076711
035-os BibID:	(cikkazonosító)e000756
Első szerző:	Unger, Julia
Cím:	Workforce requirements in rheumatology : a systematic literature review informing the development of a workforce prediction risk of bias tool and the EULAR points to consider / Julia Unger, Polina Putrik, Frank Buttgereit, Daniel Aletaha, Gerolamo Bianchi, Johannes W. J. Bijlsma, Annelies Boonen, Nada Cikes, João Madruga Dias, Louise Falzon, Axel Finckh, Laure Gossec, Tore K. Kvien, Eric L. Matteson, Francisca Sivera, Tanja A. Stamm, Zoltan Szekanecz, Dieter Wiek, Angela Zink, Christian Dejaco, Sofia Ramiro
Dátum:	2018
Megjegyzések:	Objective?To summarise the available information on physician workforce modelling, to develop a rheumatology workforce prediction risk of bias tool and to apply it to existing studies in rheumatology. Methods?A systematic literature review (SLR) was performed in key electronic databases (1946?2017) comprising an update of an SLR in rheumatology and a hierarchical SLR in other medical fields. Data on the type of workforce prediction models and the factors considered in the models were extracted. Key general as well as specific need/demand and supply factors for workforce calculation in rheumatology were identified. The workforce prediction risk of bias tool was developed and applied to existing workforce studies in rheumatology. Results?In total, 14 studies in rheumatology and 10 studies in other medical fields were included. Studies used a variety of prediction models based on a heterogeneous set of need/demand and/or supply factors. Only two studies attempted empirical validation of the prediction quality of the model. Based on evidence and consensus, the newly developed risk of bias tool includes 21 factors (general, need/demand and supply). The majority of studies revealed high or moderate risk of bias for most of the factors. Conclusions?The existing evidence on workforce prediction in rheumatology is scarce, heterogeneous and at moderate or high risk of bias. The new risk of bias tool should enable future evaluation of workforce prediction studies. This review informs the European League Against Rheumatism points to consider for the conduction of workforce requirement studies in rheumatology.
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban folyóiratcikk
Megjelenés:	Rheumatic and Musculoskeletal Diseases. - 4 : 2 (2018), p. 1-19. -
További szerzők:	Putrik, Polina Buttgereit, Frank Aletaha, Daniel Bianchi, Gerolamo Bijlsma, Johannes W. Boonen, Annelies Cikes, Nada Dias, João Madruga Falzon, Louise Finckh, Axel Gossec, Laure Kvien, Tore K. Matteson, Eric L. Sivera, Francisca Stamm, Tanja A. Szekanecz Zoltán (1964-) (reumatológus, belgyógyász, immunológus) Wiek, Dieter Zink, Angela Dejaco, Christian Ramiro, Sofia
Internet cím:	DOI Intézményi repozitóriumban (DEA) tárolt változat
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