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001-es BibID:	BIBFORM072638
035-os BibID:	(WoS)000405191600008 (Scopus)84995487524
Első szerző:	Kowal-Bielecka, Otylia
Cím:	Update of EULAR recommendations for the treatment of systemic sclerosis / Kowal-Bielecka Otylia, Fransen Jaap, Avouac Jerome, Becker Mike, Kulak Agnieszka, Allanore Yannick, Distler Oliver, Clements Philip, Cutolo Maurizio, Czirjak Laszlo, Damjanov Nemanja, del Galdo Francesco, Denton Christopher P., Distler Jörg H. W., Foeldvari Ivan, Figelstone Kim, Frerix Marc, Furst Daniel E., Guiducci Serena, Hunzelmann Nicolas, Khanna Dinesh, Matucci-Cerinic Marco, Herrick Ariane L., van den Hoogen Frank, van Laar Jacob M., Riemekasten Gabriela, Silver Richard, Smith Vanessa, Sulli Alberto, Tarner Ingo, Tyndall Alan, Welling Joep, Wigley Frederic, Valentini Gabriele, Walker Ulrich A., Zulian Francesco, Müller-Ladner Ulf, EUSTAR Co-authors
Dátum:	2017
ISSN:	0003-4967
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban systemic sclerosis
Megjelenés:	Annals Of The Rheumatic Diseases. - 76 : 8 (2017), p. 1327-1339. -
További szerzők:	Fransen, Jaap Avouac, Jérôme Becker, Mike Kulak, Agnieszka Allanore, Yannick Distler, Oliver Clements, Philip Cutolo, Maurizio Czirják László Damjanov, Nemanja del Galdo, Francesco Denton, Christopher Distler, Jörg H. W. Foeldvari, Ivan Figelstone, Kim Frerix, Marc Furst, Daniel E. Guiducci, Serena Hunzelmann, Nicolas Khanna, Dinesh Matucci-Cerinic, Marco Herrick, Ariane L. van den Hoogen, Frank van Laar, Jacob M. Riemekasten, Gabriela Silver, Richard Smith, Vanessa Sulli, Alberto Tarner, Ingo Tyndall, Alan Welling, Joep Wigley, Frederic Valentini, Gabriele Walker, Ulrich Zulian, Francesco Müller-Ladner, Ulf Szűcs Gabriella (1963-) (belgyógyász, allergológus és klinikai immunológus, reumatológus) EUSTAR
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001-es BibID:	BIBFORM033529
035-os BibID:	PMID:19147617
Első szerző:	Kowal-Bielecka, Otylia
Cím:	EULAR recommendations for the treatment of systemic sclerosis : a report from the EULAR Scleroderma Trials and Research group (EUSTAR) / O. Kowal-Bielecka, R. Landewé, J. Avouac, S. Chwiesko, I. Miniati, L. Czirjak, P. Clements, C. Denton, D. Farge, K. Fligelstone, I. Földvari, D. E. Furst, U. Müller-Ladner, J. Seibold, R. M. Silver, K. Takehara, B. Garay Toth, A. Tyndall, G. Valentini, F. van den Hoogen, F. Wigley, F. Zulian, Marco Matucci-Cerinic, EUSTAR co-authors
Dátum:	2009
ISSN:	0003-4967
Megjegyzések:	PURPOSE: The optimal treatment of systemic sclerosis (SSc) is a challenge because the pathogenesis of SSc is unclear and it is an uncommon and clinically heterogeneous disease affecting multiple organ systems. The aim of the European League Against Rheumatism (EULAR) Scleroderma Trials and Research group (EUSTAR) was to develop evidence-based, consensus-derived recommendations for the treatment of SSc. METHODS: To obtain and maintain a high level of intrinsic quality and comparability of this approach, EULAR standard operating procedures were followed. The task force comprised 18 SSc experts from Europe, the USA and Japan, two SSc patients and three fellows for literature research. The preliminary set of research questions concerning SSc treatment was provided by 74 EUSTAR centres. RESULTS: Based on discussion of the clinical research evidence from published literature, and combining this with current expert opinion and clinical experience, 14 recommendations for the treatment of SSc were formulated. The final set includes the following recommendations: three on SSc-related digital vasculopathy (Raynaud's phenomenon and ulcers); four on SSc-related pulmonary arterial hypertension; three on SSc-related gastrointestinal involvement; two on scleroderma renal crisis; one on SSc-related interstitial lung disease and one on skin involvement. Experts also formulated several questions for a future research agenda. CONCLUSIONS: Evidence-based, consensus-derived recommendations are useful for rheumatologists to help guide treatment for patients with SSc. These recommendations may also help to define directions for future clinical research in SSc.
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban egyetemen (Magyarországon) készült közlemény
Megjelenés:	Annals Of The Rheumatic Diseases. - 68 : 5 (2009), p. 620-628. -
További szerzők:	Landewé, Robert Avouac, Jérôme Chwiesko, S. Miniati, I. Czirják László Clements, Philip Denton, Christopher Farge, D. Fligelstone, Kim Földvári I. Furst, Daniel E. Müller-Ladner, Ulf Seibold, J. Silver, R. M. Takehara, Kazuhiro Garay Tóth B. Tyndall, Alan Valentini, Gabriele Hoogen, F. van den Wigley, Frederic Zulian, Francesco Matucci-Cerinic, Marco Szűcs Gabriella (1963-) (belgyógyász, allergológus és klinikai immunológus, reumatológus) Szekanecz Zoltán (1964-) (reumatológus, belgyógyász, immunológus) EUSTAR
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001-es BibID:	BIBFORM055348
Első szerző:	Maurer, Britta
Cím:	Prediction of worsening of skin fibrosis in patients with diffuse cutaneous systemic sclerosis using the EUSTAR database / Britta Maurer, Nicole Graf, Beat A. Michel, Ulf Müller-Ladner, László Czirják, Christopher P. Denton, Alan Tyndall, Carola Metzig, Vivian Lanius, Dinesh Khanna, Oliver Distler, EUSTAR co-authors
Dátum:	2015
ISSN:	0003-4967
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban systemic sclerosis
Megjelenés:	Annals of the Rheumatic Diseases 74 : 6 (2015), p. 1124-1131. -
További szerzők:	Graf, Nicole Michel, Beat A. Müller-Ladner, Ulf Czirják László Denton, Christopher Tyndall, Alan Metzig, Carola Lanius, Vivian Khanna, Dinesh Distler, Oliver Szűcs Gabriella (1963-) (belgyógyász, allergológus és klinikai immunológus, reumatológus) EUSTAR
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001-es BibID:	BIBFORM033502
035-os BibID:	WOS:000246594700008 PMID:17234652
Első szerző:	Walker, Ulrich
Cím:	Clinical risk assessment of organ manifestations in systemic sclerosis : a report from the EULAR Scleroderma Trials And Research group database / U. A. Walker, A. Tyndall, L. Czirják, C. Denton, D. Farge-Bancel, O. Kowal-Bielecka, U. Müller-Ladner, C. Bocelli-Tyndall, M. Matucci-Cerinic, EUSTAR Co-authors
Dátum:	2007
ISSN:	0003-4967
Megjegyzések:	Background: Systemic sclerosis (SSc) is a multisystem autoimmune disease, which is classified into a diffuse cutaneous (dcSSc) and a limited cutaneous (lcSSc) subset according to the skin involvement. In order to better understand the vascular, immunological and fibrotic processes of SSc and to guide its treatment, the EULAR Scleroderma Trials And Research (EUSTAR) group was formed in June 2004. Aims and methods: EUSTAR collects prospectively the Minimal Essential Data Set (MEDS) on all sequential patients fulfilling the American College of Rheumatology diagnostic criteria in participating centres. We aimed to characterise demographic, clinical and laboratory characteristics of disease presentation in SSc and analysed EUSTAR baseline visits. Results: In April 2006, a total of 3656 patients (1349 with dcSSc and 2101 with lcSSc) were enrolled in 102 centres and 30 countries. 1330 individuals had autoantibodies against Scl70 and 1106 against anticentromere antibodies. 87% of patients were women. On multivariate analysis, scleroderma subsets (dcSSc vs lcSSc), antibody status and age at onset of Raynaud's phenomenon, but not gender, were found to be independently associated with the prevalence of organ manifestations. Autoantibody status in this analysis was more closely associated with clinical manifestations than were SSc subsets. Conclusion: dcSSc and lcSSc subsets are associated with particular organ manifestations, but in this analysis the clinical distinction seemed to be superseded by an antibody-based classification in predicting some scleroderma complications. The EUSTAR MEDS database facilitates the analysis of clinical patterns in SSc, and contributes to the standardised assessment and monitoring of SSc internationally.
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban külföldön készült közlemény
Megjelenés:	Annals of the Rheumatic Diseases. - 66 : 6 (2007), p. 754-763. -
További szerzők:	Tyndall, Alan Czirják László Denton, Christopher Farge-Bancel, D. Kowal-Bielecka, Otylia Müller-Ladner, Ulf Bocelli-Tyndall, C. Matucci-Cerinic, Marco Szűcs Gabriella (1963-) (belgyógyász, allergológus és klinikai immunológus, reumatológus) EUSTAR
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