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001-es BibID:BIBFORM115341
035-os BibID:(WoS)001123624500001 (Scopus)85179364233
Első szerző:Deibel, Elisabeth
Cím:Does the impact of COVID-19 on patients with systemic sclerosis change over time? / Deibel Elisabeth, Carreira Patricia E., Vonk Madelon, del Papa Nicoletta, Becvár Radim, Guillén-Del-Castillo Alfredo, Campochiaro Corrado, Poormoghim Hadi, Liem Sophie, Lazzaroni Maria-Grazia, Giollo Alessandro, Mekinian Arsene, de Vries-Bouwstra Jeska, De Santis Maria, Balbir-Gurman Alexandra, Mihai Carina, De Luca Giacomo, Moiseev Sergey, Zanatta Elisabetta, Foti Rosario, Rednic Simona, Denton Christopher, Cutolo Maurizio, Belloli Laura, Airo Paolo, Garzanova Liudmila, Moroncini Gianluca, Inanc Murat, Panopoulos Stylianos, Tandaipan Jose-Luis, Chatelus Emmanuel, Rosato Edoardo, Kuwana Masataka, Yavuz Sule, Alegre-Sancho Juan J., Smith Vanessa, Szűcs Gabriella, Henes Jörg, Rodríguez-Pintó Ignasi, Atzeni Fabiola, Spierings Julia, Truchetet Marie-Elise, Milchert Marcin, Brito de Araujo Daniel, Riemekasten Gabriela, Bernardino Vera, Martin Thierry, del Galdo Francesco, Vacca Alessandra, Mendoza Fabian, Midtvedt Øyvind, Murdaca Giuseppe, Santiago Tania, Codullo Veronica, Cacciapaglia Fabio, Walker Ulrich, Brunborg Cathrine, Tirelli Francesca, Allanore Yannick, Furst Daniel E., Matucci Marco, Gabrielli Armando, Distler Oliver, Hoffmann-Vold Anna-Maria
Dátum:2024
ISSN:2151-464X 2151-4658
Megjegyzések:Objective. The outcome of patients with COVID-19 improved over the pandemic, including patients with systemic rheumatic diseases. However, data on patients with systemic sclerosis (SSc) are lacking. This study aimed to assess the outcome of patients with both SSc and COVID-19 over several waves.Methods. Patients with both SSc and COVID-19 who were registered in the European Scleroderma Trials and Research group (EUSTAR) were collected between April 2020 and April 2021. Patients were assigned to waves 1, 2, or 3 depending on the date of their COVID-19 diagnosis. Primary endpoints were death, intensive care unit stay, or ventilatory support (severe outcome). Subgroup analyses of patients who were hospitalized or died were conducted. General and SSc-specific characteristics and treatment were compared over the waves. Descriptive statistics and multivariate logistic regression were applied.Results. A total of 333 patients were included; 57 patients (17%) had a severe outcome, and 30 patients (9%) died. Compared to wave 1, significantly fewer patients with SSc suffered from severe COVID-19 in waves 2 and 3 (28.2% vs 9.8% and 12.7%; P < 0.001), fewer patients required hospitalization (46.7% vs 19.6% and 25.5%; P < 0.001) or ventilatory support (24.0% vs 8.7% and 10.9%; P = 0.001), and fewer patients died (15.7% vs 5.0% and 7.5%; P = 0.011). Patients were significantly younger, more often men, had less frequent arterial hypertension, and less SSc cardiac involvement over waves 1 to 3. Patients received significantly less medium to high doses of corticosteroids as they did SSc treatment.Conclusion. The outcome of patients with both SSc and COVID-19 improved significantly over time because of intrinsic and extrinsic factors.
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
folyóiratcikk
Megjelenés:Arthritis Care And Research. - 76 : 1 (2024), p. 88-97. -
További szerzők:Carreira, Patricia E. Vonk, Madelon C. del Papa, Nicoletta Becvar, Radim Guillén-Del-Castillo, Alfredo Campochiaro, Corrado Poormoghim, Hadi Liem, Sophie Lazzaroni, Maria-Grazia Giollo, Alessandro Mekinian, Arsene de Vries-Bouwstra, Jeska De Santis, Maria Balbir Gurman, Alexandra Mihai, Carina De Luca, Giacomo Moiseev, Sergey Zanatta, Elisabetta Foti, Rosario Rednic, Simona Denton, Christopher Cutolo, Maurizio Belloli, Laura Airò, Paolo Garzanova, Liudmila Moroncini, Gianluca Inanc, M. Panopoulos, Stylianos Tandaipan, José-Luis Chatelus, Emmanuel Rosato, Edoardo Kuwana, Masataka Yavuz, Sule Alegre-Sancho, Juan Jose Smith, Vanessa Szűcs Gabriella (1963-) (belgyógyász, allergológus és klinikai immunológus, reumatológus) Henes, Jörg Rodríguez-Pintó, Ignasi Atzeni, Fabiola Spierings, Julia Truchetet, Marie-Elise Milchert, Marcin Brito de Araujo, Daniel Riemekasten, Gabriela Bernardino, Vera Martin, Thierry del Galdo, Francesco Vacca, Alessandra Mendoza, Fabian A. Midtvedt, Øyvind Murdaca, Giuseppe Santiago, Tania Codullo, Veronica Cacciapaglia, Fabio Walker, Ulrich Brunborg, Cathrine Tirelli, Francesca Allanore, Yannick Furst, Daniel E. Matucci-Cerinic, Marco Gabrielli, Armando Distler, Oliver Hoffmann-Vold, Anna-Maria
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2.

001-es BibID:BIBFORM072682
Első szerző:Hudson, Marie
Cím:Exposure to ACE inhibitors prior to the onset of scleroderma renal crisis : results from the International Scleroderma Renal Crisis Survey / Hudson Marie, Baron Murray, Tatibouet Solène, Furst Daniel E., Khanna Dinesh, International Scleroderma Renal Crisis Study Investigators
Dátum:2014
ISSN:0049-0172
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
scleroderma renal crisis
Megjelenés:Seminars In Arthritis And Rheumatism. - 43 : 5 (2014), p. 666-672. -
További szerzők:Baron, Murray Tatibouet, Solène Furst, Daniel E. Khanna, Dinesh Szűcs Gabriella (1963-) (belgyógyász, allergológus és klinikai immunológus, reumatológus) International Scleroderma Renal Crisis Study Investigators
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3.

001-es BibID:BIBFORM033531
Első szerző:Hudson, Marie
Cím:An international, web-based, prospective cohort study to determine whether the use of ACE inhibitors prior to the onset of scleroderma renal crisis is associated with worse outcomes : methodology and preliminary results / Marie Hudson, Murray Baron, Ernest Lo, Joanna Weinfeld, Daniel E. Furst, Dinesh Khanna, International Scleroderma Renal Crisis Study Investigators
Dátum:2010
ISSN:1687-9260
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
külföldön készült közlemény
Megjelenés:International Journal of Rheumatology. - 2010 (2010), p. 1-7. -
További szerzők:Baron, Murray Lo, Ernest Weinfeld, Joanna Furst, Daniel E. Khanna, Dinesh Szűcs Gabriella (1963-) (belgyógyász, allergológus és klinikai immunológus, reumatológus) International Scleroderma Renal Crisis Study Investigators
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4.

001-es BibID:BIBFORM072675
Első szerző:Khanna, Dinesh
Cím:Effect of Macitentan on the Development of New Ischemic Digital Ulcers in Patients With Systemic Sclerosis / Khanna Dinesh, Denton Christopher P., Merkel Peter A., Krieg Thomas, Le Brun Franck-Olivier, Marr Angelina, Papadakis Kelly, Pope Janet, Matucci-Cerinic Marco, Furst Daniel E., DUAL-1 Investigators, DUAL-2 Investigators
Dátum:2016
ISSN:0098-7484
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
systemic sclerosis
Megjelenés:Jama-Journal Of The American Medical Association. - 315 : 18 (2016), p. 1975-1988. -
További szerzők:Denton, Christopher Merkel, Peter A. Krieg, Thomas Le Brun, Franck-Olivier Marr, Angelina Papadakis, Kelly Pope, Janet Matucci-Cerinic, Marco Furst, Daniel E. Szűcs Gabriella (1963-) (belgyógyász, allergológus és klinikai immunológus, reumatológus) DUAL-1 Investigators DUAL-2 Investigators
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5.

001-es BibID:BIBFORM072638
035-os BibID:(WoS)000405191600008 (Scopus)84995487524
Első szerző:Kowal-Bielecka, Otylia
Cím:Update of EULAR recommendations for the treatment of systemic sclerosis / Kowal-Bielecka Otylia, Fransen Jaap, Avouac Jerome, Becker Mike, Kulak Agnieszka, Allanore Yannick, Distler Oliver, Clements Philip, Cutolo Maurizio, Czirjak Laszlo, Damjanov Nemanja, del Galdo Francesco, Denton Christopher P., Distler Jörg H. W., Foeldvari Ivan, Figelstone Kim, Frerix Marc, Furst Daniel E., Guiducci Serena, Hunzelmann Nicolas, Khanna Dinesh, Matucci-Cerinic Marco, Herrick Ariane L., van den Hoogen Frank, van Laar Jacob M., Riemekasten Gabriela, Silver Richard, Smith Vanessa, Sulli Alberto, Tarner Ingo, Tyndall Alan, Welling Joep, Wigley Frederic, Valentini Gabriele, Walker Ulrich A., Zulian Francesco, Müller-Ladner Ulf, EUSTAR Co-authors
Dátum:2017
ISSN:0003-4967
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
systemic sclerosis
Megjelenés:Annals Of The Rheumatic Diseases. - 76 : 8 (2017), p. 1327-1339. -
További szerzők:Fransen, Jaap Avouac, Jérôme Becker, Mike Kulak, Agnieszka Allanore, Yannick Distler, Oliver Clements, Philip Cutolo, Maurizio Czirják László Damjanov, Nemanja del Galdo, Francesco Denton, Christopher Distler, Jörg H. W. Foeldvari, Ivan Figelstone, Kim Frerix, Marc Furst, Daniel E. Guiducci, Serena Hunzelmann, Nicolas Khanna, Dinesh Matucci-Cerinic, Marco Herrick, Ariane L. van den Hoogen, Frank van Laar, Jacob M. Riemekasten, Gabriela Silver, Richard Smith, Vanessa Sulli, Alberto Tarner, Ingo Tyndall, Alan Welling, Joep Wigley, Frederic Valentini, Gabriele Walker, Ulrich Zulian, Francesco Müller-Ladner, Ulf Szűcs Gabriella (1963-) (belgyógyász, allergológus és klinikai immunológus, reumatológus) EUSTAR
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6.

001-es BibID:BIBFORM033529
035-os BibID:PMID:19147617
Első szerző:Kowal-Bielecka, Otylia
Cím:EULAR recommendations for the treatment of systemic sclerosis : a report from the EULAR Scleroderma Trials and Research group (EUSTAR) / O. Kowal-Bielecka, R. Landewé, J. Avouac, S. Chwiesko, I. Miniati, L. Czirjak, P. Clements, C. Denton, D. Farge, K. Fligelstone, I. Földvari, D. E. Furst, U. Müller-Ladner, J. Seibold, R. M. Silver, K. Takehara, B. Garay Toth, A. Tyndall, G. Valentini, F. van den Hoogen, F. Wigley, F. Zulian, Marco Matucci-Cerinic, EUSTAR co-authors
Dátum:2009
ISSN:0003-4967
Megjegyzések:PURPOSE: The optimal treatment of systemic sclerosis (SSc) is a challenge because the pathogenesis of SSc is unclear and it is an uncommon and clinically heterogeneous disease affecting multiple organ systems. The aim of the European League Against Rheumatism (EULAR) Scleroderma Trials and Research group (EUSTAR) was to develop evidence-based, consensus-derived recommendations for the treatment of SSc. METHODS: To obtain and maintain a high level of intrinsic quality and comparability of this approach, EULAR standard operating procedures were followed. The task force comprised 18 SSc experts from Europe, the USA and Japan, two SSc patients and three fellows for literature research. The preliminary set of research questions concerning SSc treatment was provided by 74 EUSTAR centres. RESULTS: Based on discussion of the clinical research evidence from published literature, and combining this with current expert opinion and clinical experience, 14 recommendations for the treatment of SSc were formulated. The final set includes the following recommendations: three on SSc-related digital vasculopathy (Raynaud's phenomenon and ulcers); four on SSc-related pulmonary arterial hypertension; three on SSc-related gastrointestinal involvement; two on scleroderma renal crisis; one on SSc-related interstitial lung disease and one on skin involvement. Experts also formulated several questions for a future research agenda. CONCLUSIONS: Evidence-based, consensus-derived recommendations are useful for rheumatologists to help guide treatment for patients with SSc. These recommendations may also help to define directions for future clinical research in SSc.
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
egyetemen (Magyarországon) készült közlemény
Megjelenés:Annals Of The Rheumatic Diseases. - 68 : 5 (2009), p. 620-628. -
További szerzők:Landewé, Robert Avouac, Jérôme Chwiesko, S. Miniati, I. Czirják László Clements, Philip Denton, Christopher Farge, D. Fligelstone, Kim Földvári I. Furst, Daniel E. Müller-Ladner, Ulf Seibold, J. Silver, R. M. Takehara, Kazuhiro Garay Tóth B. Tyndall, Alan Valentini, Gabriele Hoogen, F. van den Wigley, Frederic Zulian, Francesco Matucci-Cerinic, Marco Szűcs Gabriella (1963-) (belgyógyász, allergológus és klinikai immunológus, reumatológus) Szekanecz Zoltán (1964-) (reumatológus, belgyógyász, immunológus) EUSTAR
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