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001-es BibID:BIBFORM067752
Első szerző:Fricska-Nagy Zsanett
Cím:The effects of fatigue, depression and the level of disability on the health-related quality of life of glatiramer acetate-treated relapsing-remitting patients with multiple sclerosis in Hungary / Zsanett Fricska-Nagy, Judit Füvesi, Csilla Rózsa, Sámuel Komoly, Gábor Jakab, Tünde Csépány, Zita Jobbágy, Gyula Lencsés, László Vécsei, Krisztina Bencsik
Dátum:2016
Megjegyzések:BACKGROUND:The common symptoms of multiple sclerosis are fatigue, depression, cognitive dysfunction, pain and sexual dysfunction, which influence the health-related quality of life of the patients.OBJECTIVE:We aimed to determine the correlations between the health-related quality of life, the level of disability, fatigue and depression in glatiramer acetate-treated patients with multiple sclerosis in Hungary.METHODS:The Hungarian versions of the Multiple Sclerosis Quality of Life-54, Fatigue Impact Scale and Beck Depression Inventory questionnaires were completed by 428 relapsing-remitting multiple sclerosis patients treated with glatiramer acetate from 19 Hungarian centers.RESULTS:The prevalence of fatigue was found to be 62.4%. The prevalence of depression was lower (13.4%) than that described in previous studies (36-54%) among patients with multiple sclerosis. Significant differences in the health-related quality of life were found between fatigued and non-fatigued patients. The level of disability, fatigue, depression and the duration of the disease correlated significantly with the quality of life. However, linear regression analysis indicated that the quality of life was predicted by the level of disability, depression, social and cognitive fatigue, but not by physical fatigue.CONCLUSIONS:Decreasing the disease activity in multiple sclerosis with immunomodulatory therapy, together with improvements of the diagnostics and treatment of the accompanying depression and fatigue are of high priority to improve the health-related quality of life of patients with multiple sclerosis.
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
Depression
Fatigue
Health-related quality of life
Immunomodulatory therapy
Multiple sclerosis
Megjelenés:Multiple Sclerosis and Related Disorders 7 (2016), p. 26-32. -
További szerzők:Füvesi Judit Rózsa Csilla Komoly Sámuel Jakab Gábor Csépány Tünde (1956-) (neurológus, pszichiáter) Jobbágy Zita Lencsés Gyula Vécsei László (1954-) (neurológus) Bencsik Krisztina
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001-es BibID:BIBFORM103016
035-os BibID:(cikkazonosító)e0264328 (Scopus)85125687513 (Wos)000776002200027
Első szerző:Kokas Zsófia
Cím:Do Hungarian multiple sclerosis care units fulfil international criteria? / Kokas Zsófia, Sandi Dániel, Fricska-Nagy Zsanett, Füvesi Judit, Biernacki Tamás, Köves Ágnes, Fazekas Ferenc, Birkás Adrienne Jóri, Katona Gabriella, Kovács Krisztina, Milanovich Dániel, Dobos Enikő, Kapás István, Jakab Gábor, Csépány Tünde, Bense Erzsébet, Mátyás Klotild, Rum Gábor, Szolnoki Zoltán, Deme István, Jobbágy Zita, Kriston Dávid, Gerócs Zsuzsanna, Diószeghy Péter, Bors László, Varga Adrián, Kerényi Levente, Molnár Gabriella, Kristóf Piroska, Nagy Zsuzsanna Ágnes, Sátori Mária, Imre Piroska, Péntek Szilvia, Klivényi Péter, Kincses Zsigmond Tamás, Vécsei László, Bencsik Krisztina
Dátum:2022
ISSN:1932-6203
Megjegyzések:A patients Because of the past 3 decades' extensive research, several disease modifying therapies became available, thus a paradigm change is multiple sclerosis care was necessary. In 2018 a therapeutic guideline was created recommending that treatment of persons with multiple sclerosis should take place in specified care units where the entire spectrum of disease modifying therapies is available, patient monitoring is ensured, and therapy side effects are detected and treated promptly. In 2019 multiple sclerosis care unit criteria were developed, emphasizing personnel and instrumental requirements to provide most professional care. However, no survey was conducted assessing the real-world adaptation of these criteria. Objective To assess whether Hungarian care units fulfil international criteria. Methods A self-report questionnaire was assembled based on international guidelines and sent to Hungarian care units focusing on 3 main aspects: personnel and instrumental background, disease-modifying therapy use, number of people living with multiple sclerosis receiving care in care units. Data on number of persons with multiple sclerosis were compared to Hungarian prevalence estimates. Descriptive statistics were used to analyse data. Results Out of 27 respondent care units, 3 fulfilled minimum requirements and 7 fulfilled minimum and recommended requirements. The least prevalent neighbouring specialties were spasticity and pain specialist, and neuro-ophthalmologist and oto-neurologist. Only 15 centres used all available disease modifying therapies. A total number of 7213 people with multiple sclerosis received care in 27 respondent centres. Compared to prevalence estimates, 2500 persons with multiple sclerosis did not receive multiple sclerosis specific care in Hungary. Conclusion Less than half of Hungarian care units provided sufficient care for people living with multiple sclerosis. Care units employing fewer neighbouring specialties, might have difficulties diagnosing and providing appropriate care for persons with multiple sclerosis, especially for people with progressive disease course, contributing to the reported low number of persons living with multiple sclerosis.
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
folyóiratcikk
Megjelenés:Plos One. - 17 : 3 (2022), p. 1-15. -
További szerzők:Sandi Dániel Fricska-Nagy Zsanett Füvesi Judit Biernacki Tamás Köves Ágnes Fazakas Ferenc (1969-) (molekuláris biológus) Birkás Adrienne Jóri Katona Gabriella Kovács Krisztina Milanovich Dániel Dobos Enikő Kapás István (1965-) (neurológus, pszichiáter) Jakab Gábor Csépány Tünde (1956-) (neurológus, pszichiáter) Bense Erzsébet Mátyás Klotild Rum Gábor Szolnoki Zoltán Deme István Jobbágy Zita Kriston Dávid Gerócs Zsuzsanna Diószeghy Péter (1948-) (ideg- és elmeszakorvos) Bors László (Neurológus, Pécs) Varga Adrián Kerényi Levente Molnár Gabriella Kristóf Piroska Nagy Zsuzsanna Ágnes Sátori Mária Imre Piroska Péntek Szilvia Klivényi Péter Kincses Zsigmond Tamás Vécsei László (1954-) (neurológus) Bencsik Krisztina
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Intézményi repozitóriumban (DEA) tárolt változat
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3.

001-es BibID:BIBFORM116231
035-os BibID:(cikkazonosító)183 (scopus)85164167253 (wos)001022417900001
Első szerző:Rajda Cecília
Cím:Treatment of relapsing multiple sclerosis in Hungary : consensus recommendation from the Hungarian neuroimmunology society / Rajda Cecilia, Rózsa Csilla, Mike Andrea, Lovas Gábor, Mezei Zsolt, Jakab Gábor, Ács Péter, Rum Gábor, Simó Magdolna, Jobbágy Zita, Bíró Zita, Trauninger Anita, Imre Piroska, Mátyás Klotild, Deme István, Illés Zsolt, Csepany Tunde
Dátum:2023
ISSN:1750-1172
Megjegyzések:Multiple sclerosis (MS) may impact quality of life, careers and family plans of the affected individuals. The current treatments with disease modifying therapies aim to prevent people with MS (pwMS) from disability accumulation and progression. Different countries have different reimbursement policies resulting in inequalities in patient care among geographical regions. Access to anti-CD20 therapies for relapsing MS is restricted in Hungary because therapy of individual cases only is reimbursed. In the light of the latest research and national guidelines, 17 Hungarian MS experts agreed on 8 recommendations regarding relapsing pwMS using the Delphi round method. Strong agreement (>80%) was achieved in all except one recommendation after three rounds, which generated a fourth Delphi round. The experts agreed on treatment initiation, switch, follow-up and discontinuation, as well as on special issues such as pregnancy, lactation, elderly population, and vaccination. Well-defined national consensus protocols may facilitate dialogue between policymakers and healthcare professionals and thus contribute to better patient care in the long run.
Tárgyszavak:Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban
folyóiratcikk
Consensus
Multiple sclerosis
Recommendation
Treatment
Megjelenés:Orphanet Journal of Rare Diseases. - 18 : 1 (2023), p. 1-8. -
További szerzők:Rózsa Csilla Mike Andrea (neurológus, Pécs) Lovas Gábor Mezei Zsolt (1979-) (neurológus) Jakab Gábor Ács Péter Rum Gábor Simó Magdolna Jobbágy Zita Bíró Zita Trauninger Anita (Pécs orvos) Imre Piroska Mátyás Klotild Deme István Illés Zsolt (neurológus, Pécs) Csépány Tünde (1956-) (neurológus, pszichiáter)
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