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001-es BibID:	BIBFORM103016
035-os BibID:	(Scopus)85125687513 (Wos)000776002200027
Első szerző:	Kokas Zsófia
Cím:	Do Hungarian multiple sclerosis care units fulfil international criteria? / Kokas Zsófia, Sandi Dániel, Fricska-Nagy Zsanett, Füvesi Judit, Biernacki Tamás, Köves Ágnes, Fazekas Ferenc, Birkás Adrienne Jóri, Katona Gabriella, Kovács Krisztina, Milanovich Dániel, Dobos Enikő, Kapás István, Jakab Gábor, Csépány Tünde, Bense Erzsébet, Mátyás Klotild, Rum Gábor, Szolnoki Zoltán, Deme István, Jobbágy Zita, Kriston Dávid, Gerócs Zsuzsanna, Diószeghy Péter, Bors László, Varga Adrián, Kerényi Levente, Molnár Gabriella, Kristóf Piroska, Nagy Zsuzsanna Ágnes, Sátori Mária, Imre Piroska, Péntek Szilvia, Klivényi Péter, Kincses Zsigmond Tamás, Vécsei László, Bencsik Krisztina
Dátum:	2022
ISSN:	1932-6203
Megjegyzések:	A patients Because of the past 3 decades' extensive research, several disease modifying therapies became available, thus a paradigm change is multiple sclerosis care was necessary. In 2018 a therapeutic guideline was created recommending that treatment of persons with multiple sclerosis should take place in specified care units where the entire spectrum of disease modifying therapies is available, patient monitoring is ensured, and therapy side effects are detected and treated promptly. In 2019 multiple sclerosis care unit criteria were developed, emphasizing personnel and instrumental requirements to provide most professional care. However, no survey was conducted assessing the real-world adaptation of these criteria. Objective To assess whether Hungarian care units fulfil international criteria. Methods A self-report questionnaire was assembled based on international guidelines and sent to Hungarian care units focusing on 3 main aspects: personnel and instrumental background, disease-modifying therapy use, number of people living with multiple sclerosis receiving care in care units. Data on number of persons with multiple sclerosis were compared to Hungarian prevalence estimates. Descriptive statistics were used to analyse data. Results Out of 27 respondent care units, 3 fulfilled minimum requirements and 7 fulfilled minimum and recommended requirements. The least prevalent neighbouring specialties were spasticity and pain specialist, and neuro-ophthalmologist and oto-neurologist. Only 15 centres used all available disease modifying therapies. A total number of 7213 people with multiple sclerosis received care in 27 respondent centres. Compared to prevalence estimates, 2500 persons with multiple sclerosis did not receive multiple sclerosis specific care in Hungary. Conclusion Less than half of Hungarian care units provided sufficient care for people living with multiple sclerosis. Care units employing fewer neighbouring specialties, might have difficulties diagnosing and providing appropriate care for persons with multiple sclerosis, especially for people with progressive disease course, contributing to the reported low number of persons living with multiple sclerosis.
Tárgyszavak:	Orvostudományok Klinikai orvostudományok idegen nyelvű folyóiratközlemény külföldi lapban folyóiratcikk
Megjelenés:	Plos One. - 17 : 3 (2022), p. 1-15. -
További szerzők:	Sandi Dániel Fricska-Nagy Zsanett Füvesi Judit Biernacki Tamás Köves Ágnes Fazakas Ferenc (1969-) (molekuláris biológus) Birkás Adrienne Jóri Katona Gabriella Kovács Krisztina Milanovich Dániel Dobos Enikő Kapás István (1965-) (neurológus, pszichiáter) Jakab Gábor Csépány Tünde (1956-) (neurológus, pszichiáter) Bense Erzsébet Mátyás Klotild Rum Gábor Szolnoki Zoltán Deme István Jobbágy Zita Kriston Dávid Gerócs Zsuzsanna Diószeghy Péter (1948-) (ideg- és elmeszakorvos) Bors László (Neurológus, Pécs) Varga Adrián Kerényi Levente Molnár Gabriella Kristóf Piroska Nagy Zsuzsanna Ágnes Sátori Mária Imre Piroska Péntek Szilvia Klivényi Péter Kincses Zsigmond Tamás Vécsei László (1954-) (neurológus) Bencsik Krisztina
Internet cím:	Szerző által megadott URL DOI Intézményi repozitóriumban (DEA) tárolt változat
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